Additional information
by Lena Hanna (Author)
"The Boy Born Blue: A Story of a CHD Superhero" is a story about a boy named Decklan, who was born with a critical congenital heart defect. He underwent open heart surgery at five weeks old. After developing several complications following his operation, Decklan fought hard to get through all the challenges that came his way. As he was fighting battles in the hospital, he transformed into a real-life superhero. Decklan remained brave and full of pure happiness through it all. He is an inspiration to many and teaches his loved ones to have the courage and strength to fight against anything they may face. Although congenital heart defects affect one in a hundred babies and is the top birth defect in the world, many people are unaware of CHD until their child or family member is diagnosed. This book was written to provide hope for all the CHD superheroes there are in the world and to spread awareness to those who are unaware. Either way, everyone can learn something from reading the story of Decklan.
